Sometimes I feel a bit silly saying happy birthday to my young children over the Facebook platform. They don’t even have accounts and two of them can’t read yet. Is it attention seeking? Am I bragging about my beautiful children and flaunting their amazing qualities? Perhaps.
However, when I read my children their well wishes and see their faces radiate with joy, I am reminded that this act is a gift. It is a connection to of all of the beautiful grown ups in their lives that love them and support them from India, Uruguay, across the street and countless places in between. It is a reminder of the human net that is there to catch them when they trip and fall.
Facebook has its shadow sides but creating moments like these are precious.
I live near a school zone so multiple times a day when I am driving to or from home there are bright red flashing letters reminding me to SLOW DOWN. In the midst of recovery, I need this reminder more than ever.
I had no idea it was possible to overdo “recovery” but where there’s a will, there’s a way. So as I zoom from one kind of therapy appointment to the next, making sure to get in quality time with the kids, help with household tasks and (on a good day) squeeze in my exercise regimen, the last thing I’m remembering to do is to slow down enough for the red to stop flashing.
Ironically with concussion recovery, slowing down is exactly what my brain needs for healing. And in the end, SLOW DOWN is probably an appropriate message for most of us in this world.
Here is a post I shared on Facebook. I thought it was worthy enough to share here too:
I have received a huge gift in the form of a brain injury. Since my fall in May, I have developed a deep understanding of folks with sensory integration disorder/autism. While I want to be in public and participate fully in life, loud noises, movements, strong lights, screens, reading and visual chaos cause sometimes debilitating pain, deep irritation, nausea and anxiety.
When I choose to be out and about for short periods of time, I must also plan for a long nap or quiet space afterward. Using tools such as noise cancelling headphones, prescription sunglasses, a brimmed hat and a weighted compression vest, make life more accessible but do not solve it all.
Simple things like checking Facebook or email have become pleasures I will no longer take for granted (for example, this post took three days and several naps to write).
Meditation, cranial sacral therapy, talk therapy, physical therapy and vision therapy have been a saving grace, teaching my brain to process outside stimuli without the trauma response.
The support of my family, friends, faith community and colleagues also play a key role in a healing journey I could never have imagined.
We all walk this world as a product of our past and current stories in bodies that have their own agenda. Before the gift of brain injury, I chose to judge myself and others based on outward appearance and an arbitrary set of standards for living, healing and interacting. Now I know judgement heals nothing. It is through compassion and acceptance of what is, that transformation occurs.
I share this experience not for pity or attention but in the hope of developing more compassion for ourselves and the people we meet each day.
I’ve been going to an incredible vision therapist for help with my concussion. One thing I’ve learned is that to survive the world these days I need to be geared up with high tech noise canceling headphones, prescription sunglasses and a hat with a good brim. On hard days, I double up the noise canceling headphones and tune out most of the sound that the world has to offer.
At my recent appointment, I had on on my gear including my hat balancing over the double dose of ear protection. The receptionist asked if the lights were too bright. I said yes but I’m used to accommodating to it and I am geared up and prepared.
She said you don’t have to do that here. We can just make it comfortable for you. Then she proceeded to get up and turn off the lights. In the therapy room the windows were covered, the lights turned off and my doctor blocked the strong reflection on a mirror with her hand as we walked by it.
While this isn’t a realistic expectation when going to Target or picking up the kids from school, it sure is nice to have little islands in my day where I don’t have to accommodate for the environment. The environment is accommodated for me. It will be a long time before I take that for granted again.
While our daughter and I share many attributes, our shared foot width was apparent from her birth. So when she got a pair of shoes in the mail she said, ” oh I love them and they do squeeze a little bit but my feet are too wide so I’ll just have to deal.”
After living through many years of squeezy shoes (and uncomfortable feet), I cringed at the comment and couldn’t help but turn it into a conversation.
“Hey kiddo!” I said, “You don’t need to squeeze into shoes that are too tight. Your feet are just the right size. We just need to find shoes that match your feet.”
“Really?” She replied. “OK, I would like that.”
What if we gave ourselves permission to find the right fit, from shoes and clothes to friends, careers, vacations and religious practice?
At the zoo today one sign after another reminded us to stay on the path. Nobody told us what to look at or how fast to go on the paved route past the wildlife. There were no indications as to when to take a break on the countless benches, simply to stay on the path. It was a true reminder of my journey through healing: Stay on the path; all the other decisions will come in their own time.
My grandmother was a Methodist missionary in Alaska before it was a state. At 84 she was still up for adventure and asked for me to plan one that we could share together. We headed to Costa Rica from my dorm room in college and found ourselves in well loved Catholic church in downtown San Jose. My grandfather had died 10 years before and my heart was raw with my first major break up.
Together we lit little candles with long matches in honor of our loss. I had a deep sense that my grandmother honored my pain in the same way I honored her’s. Love is love. Loss is loss. Bringing light into the world helps.